Which organisations does the Royal Devon collaborate with to provide data for research?

Arcturis is a real-world health data company based in Oxford, UK.

Arcturis works in partnership with several NHS organisations, including the Royal Devon, to analyse the real-world data from patient’s electronic health records to help develop and discover new medicines and treatments.

Our strategic research agreement with Arcturis helps us to curate deep, enriched real-world data into research-ready datasets that Arcturis can use to identify patterns and insights that have the potential to improve clinical trials, better understand diseases, and accelerate the discovery of new medicines and treatments that will improve the health and care of our communities.

Through the collaboration, staff at the Royal Devon make clinical data available to Arcturis in a way which helps ensure patient privacy is protected. As a result, The Royal Devon commits to sharing no confidential identifiable patient information with Arcturis.

With pharmaceutical, academic and NHS research clients in the UK and around the world, Arcturis then applies traditional and innovative medical statistics, machine learning and data science approaches to deliver the research findings and insights needed to advance patient treatments and care.

This way of accessing and analysing anonymised clinical data for medical research is called the Arcturis ‘Real World Data Network’.

All data requests made by Arcturis through the Real World Data Network follow strict protocols and conditions approved and set by the NHS Health Research Authority (HRA) and the independent body which provides expert advice on the use of confidential patient information known as the Confidentiality Advisory Group (CAG).

Requests are also carefully reviewed by an expert group at the Royal Devon and go through our information governance approval processes, including sign off by the Trust’s Caldicott Guardian

The Royal Devon processes described above regarding the approval of applications and de-identification of data are followed when Arcturis make a data request.

If you have any questions or concerns about how we process data, please visit the patient privacy notice section of our website.

Here you will find further information and contact details of where to direct queries:

For our Trust privacy notice, please these pages.

If you have any questions about opting-out of trust staff processing your confidential patient information specifically for the Arcturis Real World Data Network, you can also contact the Trust data protection officer via: rduh.dpo@nhs.net

Opt out information is available here.

More information about the Arcturis Real World Data Network for patients and members of the public, including answers to frequently asked questions, is available at: https://www.arcturisdata.com/governance-and-ethics/patient-public-info/

Detailed and technical information about how and why different types of data are processed is also provided in the Network’s Transparency and Privacy Notice available at:

https://www.arcturisdata.com/governance-and-ethics/

If after reading this information you have any questions or queries, or would like any further information, please do not hesitate to contact us via:

Royal Devon University Healthcare NHS Foundation Trust
Information Governance Office
Royal Devon and Exeter Hospital (Wonford)
Barrack Road,
Exeter,
EX2 5DW

Email: rduh.dpo@nhs.net