National registry of rare kidney diseases

The Royal Devon hosts this national registry of rare kidney diseases which is a UK Kidney Association initiative and the largest registry of its kind world-wide.

Since launch, over 660 people from Exeter and surrounding areas have been recruited to join over 33,000 patients recruited from 109 sites across the UK.

By joining the registry, you can help improve understanding, treatment, and care for people with rare kidney conditions.

Speak to your clinician to find out more, or contact the renal research team: rduh.renalresearch@nhs.net