The Generation Study
The Generation Study is a long-term research study. We want to understand if we can improve how we diagnose and treat genetic conditions by looking at the DNA of newborn babies.
What are the goals of the study?
This research has two main goals:
- Find rare genetic conditions early, so affected babies can get treatment fast
- Learn more about genes and health, so we can improve testing and treatment for genetic conditions in the future
This study will help us understand how this kind of testing could work for babies, families, and the NHS. By taking part, you could find out early about a possible genetic condition in your baby. You’d also join a community of families helping to support research about genes and health. Joining the study could also help future generations of children with genetic conditions get a healthier start to life.
People from all backgrounds are welcome to join this study. But people from Black, Asian, and minority ethnic communities are under-represented in this kind of research. If you are a member of these communities, taking part could make the study more diverse — and help to improve genetic testing for everyone in the future.
Who can join?
To be eligible for the study, you need to:
- Be pregnant
- Have an NHS number
- Be 16+ years old
- Not be having twins, triplets, etc
- Not be a surrogate or planning to give the baby up for adoption
- Be registered with a GP in England
How do I take part?
Learn more about taking part by visiting the Generation Study website here
You can also speak with your midwife, or maternity care team, and ask to be put in touch with the Generation Study team.