Interstitial lung disease

Interstitial lung disease (ILD) refers to a group of respiratory conditions including idiopathic pulmonary fibrosis (IPF), sarcoidosis, hypersensitivity pneumonitis (HP), asbestosis, ILD associated with rheumatologic conditions, as well as many less common conditions.

Often referred to as Pulmonary Fibrosis, ILDs cause inflammation or scarring of the lung tissue (unlike Asthma or COPD which affect the airways). ILD is not cancer or cystic fibrosis and is not contagious, and prognosis varies with the type of ILD.

Accurate and early diagnosis is essential for optimal management. Many patients require close monitoring and follow-up by a respiratory physician with a special interest in ILD and a specialist ILD nurse.

Information and about us

The Interstitial Lung Disease Service at the Royal Devon and Exeter is an NHS England regional commissioned service covering Devon, Cornwall and some of Dorset and Somerset. Your GP or local respiratory doctor will need to refer you to the service. We encourage patients attending our regional clinic to bring a family member or friend as it can be a busy day and they will be given lots of information. We hope you will meet several members of the ILD team and will provide you with contact details.

The referral is discussed in an ILD multidisciplinary team (MDT) meeting which includes an expert ILD physician, ILD radiologist and ILD Nurse Specialist and when required a pathologist and/or rheumatologist. After this meeting, and if appropriate,  the patient is offered a clinic appointment.  We use a shared care approach, supporting local hospitals in caring for their patients and reducing the frequency of patient visits to the Royal Devon and Exeter Hospital.

In addition to support and management of their symptoms and condition, where appropriate, we offer patients clinical trials, pulmonary rehabilitation, oxygen assessment and lung transplant.

Contact us

Northern services 

The Respiratory Specialist Nurses provide a Helpline number 01271 311600 which is available Mon-Fri 8.00-16.00.

CREADO Team – 01271 341505

Sharon Standen – 01271 349589

Sally Pearson – 01271 322443

Jess Cole – 01271 311600

Eastern services

If you want to get in contact, please call 01392 403701.

 

Meet the team

With your permission, medical students and/or other health care professionals may be present in our clinics for their own learning. 

Consultants

Dr Alison Moody – Consultant Physician
Dr Georgina Hands – Consultant Physician
Dr Jareer Raza – Consultant Physician

Respiratory Nurses

Lynn Greenfield – Respiratory Specialist Nurse
Sharon Newcombe – Respiratory Nurse

Secretaries

Sharon Standen – Secretary to Dr Alison Moody & Dr Jareer Raza
Sally Pearson – Secretary to Dr Georgina Hands
Jess Cole – Administrator for Respiratory Nurses
Melanie Duncan and Angela Sutton – Administrator for Lesley Parsons and Linda Jordan

 

Eastern services

 

The core team is made up of healthcare professionals with a specialist interest in bronchiectasis. They are:

  • Dr Lee Dobson, Consultant Respiratory Physician
  • Dr Phil Mitchelmore, Consultant Respiratory Physician
  • Mrs Hilary Mortimer, Bronchiectasis Nurse Specialist
  • Ms Maria Del Pilar Rodal Bravo, Respiratory Nurse Specialist
  • Mrs Kat Thomson, Clinical Lead Physiotherapist in Respiratory Medicine
  • Dr Nick Withers, Consultant Respiratory Physician

The service also works closely with other specialist teams including: the regional immunology centre; radiology; microbiology; rheumatology; vascular access; stop smoking services; ear, nose & throat (ENT); pharmacy; and the regional Primary Ciliary Dyskinesia service.

 

Where to find us

Your healthcare professional will advise where your appointment will take place. Your appointment may take place at one of our outpatient clinics situated within our main hospital sites or within the community.

Clinics may be face to face, via video link or telephone. It is better if we see you face to face for your first appointment.

Northern Services

North Devon District Hospital 

North Devon District Hospital

Raleigh Park

Barnstaple

Devon

EX31 4JB

Eastern services

Royal Devon and Exeter Hospital (Wonford) 

Royal Devon and Exeter Hospital (Wonford)

Barrack Road

Exeter

EX2 5DW

Department of Respiratory Medicine

 

 

Services and treatments

Treatments focus on targeting the symptoms patients experience and managing the disease. Key areas of focus include keeping the widened airways clear of mucus and controlling infection in the lungs.

Examples of treatments include:

  • Specialist physiotherapy techniques and devices
  • Exercise courses
  • Solutions and tablets to loosen mucus
  • Assistance with nasal symptoms via irrigation and steroids
  • Anti-inflammatory medications
  • Inhaled maintenance antibiotics
  • Rescue antibiotics (including intravenous antibiotics which can be given at home in some cases)

Supporting you

Our service has close links with the ILD charities (websites listed above) and various support groups in the region. When attending clinic we provide you with up-to-date information listing these contacts and providing you with information on who to contact when.

The helplines for these charities are:

  • Action for Pulmonary Fibrosis: 01223 785725
  • British Lung Foundation: 03000 030 555
  • Pulmonary Fibrosis Trust: 01543 442191

We are pleased that we have good links with many local respiratory services and we ensure that we copy them in to any letters sent to the GP.

Who to contact when:

  • Exeter ILD phone number: medication, prescriptions and side effects for medication prescribed by ILD team and to chase yearly appointments if required
  • Your local respiratory consultant secretary: for regular local follow-up
  • GP: signs of a chest infection (increase in cough/breathlessness) for antibiotics and medications to treat symptoms / routine blood test appointments unless advised otherwise

Patient information leaflets

We produce a wide range of leaflets which provide information about our services and about the treatment you might receive in our clinics or during your stay in hospital. 

We also produce these in different formats including large print, please contact the department you are visiting for more information.

Find out more

Information for healthcare professionals

Please email rde-tr.ildrespiratory@nhs.net

For regional patients, phone 01392 403701

For local RD&E patients, phone 01392 408734

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Last updated: November 15, 2022