Cystic Fibrosis

Cystic fibrosis is an inherited condition that causes sticky mucus to build up in the lungs and digestive system. This causes lung infections and problems with digesting food.

In the UK, most cases of cystic fibrosis are picked up at birth using the newborn screening heel prick test.

Symptoms usually start in early childhood and vary from child to child, but the condition gets slowly worse over time, with the lungs and digestive system becoming increasingly damaged.

Treatments are available to help reduce the problems caused by the condition and make it easier to live with.

Our dedicated CF website can tell you more: Exeter Cystic Fibrosis Centre (click here)

The Exeter CF Centre

The Exeter CF Centre is recognised as one of the UK’s specialist CF Centres. Our service offers an experienced multidisciplinary team who aim to provide comprehensive care, meeting high quality National (NHSE) standards while meeting the individual needs and geography of our patients. We are fortunate to deliver both Paediatric and Adult care within the same hospital, providing continuity into adulthood  and ease of transition between services. CF Annual Registry Data shows that we are consistently one of the top UK centres when assessed by lung function, weight and prevention of pseudomonas colonisation.

Our dedicated CF website can tell you more: Exeter Cystic Fibrosis Centre (click here)

Contact us

Adult services

 

Monday to Friday, 9am to 5pm, call:

CF Team Office: 01392 402726

CF appointments: 01392 406493

Other useful contacts

Adult’s CF Nurse mobile: 07468 718606

Adult Physiotherapist: 07881 787584

Culm ward West (adults): 01392 402673

Culm Ward East (adults): 01392 402545

Tom Kent (Exercise therapist): 07929764681

For routine enquiries please use our team email: rde-tr.exetercf@nhs.net

Out of hours

Please call our switchboard on 01392 411611 and ask for the 'on call adult Medical Registrar'. Remember this will access Emergency rather than Specialist CF care.

 

Paediatric services

 

Please contact us Monday to Friday 9am to 5pm on:

CF Team Office: 01392 402726

CF appointments: 01392 406493

Other useful contacts:

Paediatric CF Nurse mobile: 07876 560546

Paediatric Physiotherapist: 07468 718605

Bramble ward (Children): 01392 402666 (green), 402679 (yellow)

For routine enquiries please use our team email:

rde-tr.exetercf@nhs.net

Out of Hours

If your child is unwell with CF related symptoms and you feel it cannot wait until next working day, please phone 01392 411611 and ask for the 'on-call Paediatric Registrar'.

Meet the team

Adult services

  • Dr Lee Dobson - Consultant in Respiratory medicine
  • Dr Nick Withers - Consultant lead for adult CF services
  • Dr Phil Mitchelmore - Consultant in Respiratory medicine
  • Dr Chris Sheldon - Consultant in Respiratory medicine and CF
  • Jan Williams – Respiratory Specialist Nurse for Cystic Fibrosis & Bronchiectasis
  • Dr Cressida Aukland - Microbiology Consultant lead 
  • Milly Dack, Sarah Murray, Hilary Mortimer, Hannah Pike - CF Nurse Specialists, East
  • Jan Williams - Respiratory Specialist Nurse for Cystic Fibrosis & Bronchiectasis, North
  • Helen Speedy - local lead for CF physiotherapy 
  • Marie Barret - Dietician Team Lead
  • Tom Kent - Exercise Therapist

We also have a dedicated Clinical Psychologist, Pharmacist, research nurses and other specialist support staff that help us run our service. 

 

Paediatric services

  • Dr Beth Enderby - Consultant Lead for Paediatric CF services
  • Dr Emily Bell - Consultant Paediatrician
  • Dr Rachel Elderkin - Staff and Associate Specialist grade Paediatrician
  • Dr Dermot Dalton - Consultant Paediatrician
  • Helen Speedy - local lead for CF physiotherapy 
  • Jan Williams - Respiratory Specialist Nurse for Cystic Fibrosis & Bronchiectasis - North
  • Jenny Tollit is our Lead CF Specialist nurse - East
  • Dr Cressida Aukland - Microbiology Consultant lead 
  • Alice Day - Lead Physiotherapist
  • Jayne Trott, Helen Speedy, Adam Caunter - Specialist Physiotherapists
  • Tom Kent - Exercise Therapist
  • Marie Barret - Dietician Team Lead
  • Holly Jones - Clinical Psychologist 

We also have a dedicated Clinical Psychologist, Pharmacist, research nurses and other specialist support staff that help us run our service. 

 

Where to find us

Your healthcare professional will advise where your appointment will take place. Your appointment may take place at one of our outpatient clinics situated within our main hospital sites or within the community.

Clinics may be face to face, via video link or telephone. It is better if we see you face to face for your first appointment.

Northern Services

North Devon District Hospital 

North Devon District Hospital

Raleigh Park

Barnstaple

Devon

EX31 4JB

Eastern services

RD&E Wonford, Barrack Rd, Exeter EX2 5DW

Department of Respiratory Medicine, Q219

Clinics in Medical Outpatients (Level 1, Area D)

 

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Last updated: November 24, 2022