Cystic Fibrosis
Cystic fibrosis is an inherited condition that causes sticky mucus to build up in the lungs and digestive system. This causes lung infections and problems with digesting food.
In the UK, most cases of cystic fibrosis are picked up at birth using the newborn screening heel prick test.
Symptoms usually start in early childhood and vary from child to child, but the condition gets slowly worse over time, with the lungs and digestive system becoming increasingly damaged.
Treatments are available to help reduce the problems caused by the condition and make it easier to live with.
Our dedicated CF website can tell you more: Exeter Cystic Fibrosis Centre (click here)
The Exeter CF Centre
The Exeter CF Centre is recognised as one of the UK’s specialist CF Centres. Our service offers an experienced multidisciplinary team who aim to provide comprehensive care, meeting high quality National (NHSE) standards while meeting the individual needs and geography of our patients. We are fortunate to deliver both Paediatric and Adult care within the same hospital, providing continuity into adulthood and ease of transition between services. CF Annual Registry Data shows that we are consistently one of the top UK centres when assessed by lung function, weight and prevention of pseudomonas colonisation.
Our dedicated CF website can tell you more: Exeter Cystic Fibrosis Centre (click here)
Contact us
Adult services
Monday to Friday, 9am to 5pm, call:
CF Team Office: 01392 402726
CF appointments: 01392 406493
Other useful contacts
Adult’s CF Nurse mobile: 07468 718606
Adult Physiotherapist: 07881 787584
Culm ward West (adults): 01392 402673
Culm Ward East (adults): 01392 402545
Tom Kent (Exercise therapist): 07929764681
For routine enquiries please use our team email: rde-tr.exetercf@nhs.net
Out of hours
Please call our switchboard on 01392 411611 and ask for the 'on call adult Medical Registrar'. Remember this will access Emergency rather than Specialist CF care.
Paediatric services
Please contact us Monday to Friday 9am to 5pm on:
CF Team Office: 01392 402726
CF appointments: 01392 406493
Other useful contacts:
Paediatric CF Nurse mobile: 07876 560546
Paediatric Physiotherapist: 07468 718605
Bramble ward (Children): 01392 402666 (green), 402679 (yellow)
For routine enquiries please use our team email:
Out of Hours
If your child is unwell with CF related symptoms and you feel it cannot wait until next working day, please phone 01392 411611 and ask for the 'on-call Paediatric Registrar'.
Meet the team
Adult services
- Dr Lee Dobson - Consultant in Respiratory medicine
- Dr Nick Withers - Consultant lead for adult CF services
- Dr Phil Mitchelmore - Consultant in Respiratory medicine
- Dr Chris Sheldon - Consultant in Respiratory medicine and CF
- Jan Williams – Respiratory Specialist Nurse for Cystic Fibrosis & Bronchiectasis
- Dr Cressida Aukland - Microbiology Consultant lead
- Milly Dack, Sarah Murray, Hilary Mortimer, Hannah Pike - CF Nurse Specialists, East
- Jan Williams - Respiratory Specialist Nurse for Cystic Fibrosis & Bronchiectasis, North
- Helen Speedy - local lead for CF physiotherapy
- Marie Barret - Dietician Team Lead
- Tom Kent - Exercise Therapist
We also have a dedicated Clinical Psychologist, Pharmacist, research nurses and other specialist support staff that help us run our service.
Paediatric services
- Dr Beth Enderby - Consultant Lead for Paediatric CF services
- Dr Emily Bell - Consultant Paediatrician
- Dr Rachel Elderkin - Staff and Associate Specialist grade Paediatrician
- Dr Dermot Dalton - Consultant Paediatrician
- Helen Speedy - local lead for CF physiotherapy
- Jan Williams - Respiratory Specialist Nurse for Cystic Fibrosis & Bronchiectasis - North
- Jenny Tollit is our Lead CF Specialist nurse - East
- Dr Cressida Aukland - Microbiology Consultant lead
- Alice Day - Lead Physiotherapist
- Jayne Trott, Helen Speedy, Adam Caunter - Specialist Physiotherapists
- Tom Kent - Exercise Therapist
- Marie Barret - Dietician Team Lead
- Holly Jones - Clinical Psychologist
We also have a dedicated Clinical Psychologist, Pharmacist, research nurses and other specialist support staff that help us run our service.
Where to find us
Your healthcare professional will advise where your appointment will take place. Your appointment may take place at one of our outpatient clinics situated within our main hospital sites or within the community.
Clinics may be face to face, via video link or telephone. It is better if we see you face to face for your first appointment.
Northern Services
North Devon District Hospital
North Devon District Hospital
Raleigh Park
Barnstaple
Devon
EX31 4JB
Eastern services
RD&E Wonford, Barrack Rd, Exeter EX2 5DW
Department of Respiratory Medicine, Q219
Clinics in Medical Outpatients (Level 1, Area D)